Well we were home for 5 days and now we are back in the hospital today. Malachi had surgery today to put a GTube feeding tube in . He’s been loosing more weight than gaining the past couple of years. hoping having the tube will help him. Hopefully we are just staying overnight and then we will be going home tomorrow evening sometime 💜💚💜 we are resting in our room and watching movies
Amber Sue"Davids Butterfly"Happy Weekend Friends!
- 2 months, 22 days ago
Hospital stay day #13 Well to our great surprise they decided to Let us GO HOME!!!!! For a week. We go back next Tuesday July 31st to have our GTube put in. Missy from Easter seals came to visit today and helped us pack up! Aunt Rebecca S. Sego and cousin Destiny Sego came down and finished loading the car for us 😊 They also followed us home and helped us unload the 🚙 . Malachi was mad when we first got home around 5 for about an hour. We had to put an ace bandage around his arm to keep him from messing with his IV pic line. He has settled down a bit he got excited and jumped up to put a movie in tv and fell on his butt! He keeps trying to get up so hopefully Physical therapy will not take too long to get him walking normally! Amber Sue"Davids Butterfly"Happy Weekend Friends!
- 2 months, 27 days ago
Hospital day #12 Well today was a pretty relaxing day in our room we slept in until 9 am today and then just hung out and watched movies. Speech therapy came by to watch him eat a smoothie to make sure we didn’t need a swallow test. We had some very tall visitors today MU basketball team came to see us🏀 We also got to see the Therapy dog Trooper the border collie. No big changes they are trying to work our GTube surgery into this week so we can go home sooner but not definite yet. He is still drinking smoothies: 10:30 -11 - 7 oz Mango colada with mirilax in it Lol!! 2:00-2:45 - 27 oz strawberry banana 7:00-7:35 - 20 oz of Mangos and creme and 7 oz of Peanut Butter dream protein smoothie.
They came and gave us our Beads of courage we have a lot of beads in our red bag. Mackenzie and I will put his bracelets together when we get home. Each bead represents a different parts of his hospital journey.
Thank you for all the continued prayers! If you are praying for 💩 💩POOP! Please stop now! Today we have accomplished that! It may be a very long night! We have had 2 💩explosions Lol! The nurses are starting to draw straws on who gets to help tackle these!! They are definitely earning their STAR Nurse recognitions tonight! Amber Sue"Davids Butterfly"Happy Weekend Friends!
- 2 months, 29 days ago
Today we woke up at 6:30 again hungry for a smoothie lol. Malachi set up on the side of the bed all morning or rather until 2:30 pm . Today was a day of Therapy we had Music Therapy with Miss Emily . He was not in a mood for therapy people today he kept telling them to leave. During MT they did the 5 in the bed roll over and he kept trying to roll over or out of 🛏 lol. He tried so hard to refuse PT today he did not want to cooperate with Kayla at all. He threw a fit on the floor lol but kept trying to scoot to me. He did however stand up better today not as wobbly when we change his pull-up. He also took about 8-16 steps today with some assistance in PT . After therapy we had visitors Bill Toops and Beth Yount bearing bountiful gifts for us!! Thank you Beth for the Oreos and mango sunrise smoothie for Malachi! Thank You to FBC family for the many snacks and gifts Love you all.... continue the prayers please pray for me that My body can last a little while longer! I was in a lot of pain today! Lifting Malachi is taking its toll on me! God’s got this! I am really hoping that Dr. proctor was able to convince the surgeon Dr. Raum to move up GTube surgery to this week Hopefully Wednesday!